by Noreen
(New Hampshire)
Noreen 2009
I had Sleep Apnea for many years now. I am, however, an informal patient. I'm not obese. I am 49 yrs. old, 5 ' 4 "tall, weighed 140 lb, and do not have a large neck as do some patients. My doctors have 4 surgical. I tried CPAP, Bi PAP and oral appliance and have not taken any significant benefit from any of these efforts.
Procedures that tried so far include correction of a deviated septum, UVPP, a UPPP (removal of the rest of the uvula and soft palate tissues) and a Hyoid promotion.
From the past my sleep study, the numbers are worse than ever before, and even worse after all these procedures. I am about my wits end with this.
What else can I mitigate the effect of suffering and every day in my life that had this situation? I need help before something tragic I occurs as a result of having Sleep Apnea. One of my doctors believe that it is intrusive apnea, while another believes that Central Apnea that is causing the problem.
I have seen doctors 5 members for this situation, and I'm still no relief from symptoms. I am the only member of my immediate family members are not yet having a heart attack, and I would like to keep it that way! :-)
Help with advice and direction to a specialist or what you can do so I can resolve to see my children grown and try to have a reasonably normal lives.
Thank you very much for any help you can provide.
Your story about Sleep Apnea is very detailed, and I appreciate your effort to write it down. The history of your treatments discloses personal commitment and a great desire to flee Apnea sleep and have a wonderful life.
If others have Apnea Patients your motivation and its commitment to treat sleep disorders, would have been closer to get a good night's sleep.
Some of them I tried really hard from this awful syndrome, just like you. But I must say that today there are more possibilities to address Sleep Apnea than ever.
As I said earlier, I appreciate the information provided in your chain, because I noticed something interesting (personal opinion): you said that your doctor has said that he thinks you have obstructive apnea, and the other believes that you have a central Apnea. And labelling did doctors in 5 States? Wow!
Noreen, I. .. and correct me if I am wrong, that we haven't seen yet a certified sleep specialist, or a sleep Center. No sleep specialist will tell you believes the regarding your disorder, but only the result of a sleep study can reveal high accuracy type your sleep disorders and how serious it is.
I think this is a critical issue for your doctors to get right: the problem Obstructive Sleep Apnea (OSA) or the Central Sleep Apnea (CSA)?
OSA, your brain sends signals to the lungs to breathe, but because of a collapsed the upper airways, air does not take in. Hence a trach will allow you to breath night because your brain sends signals even for the lungs to breathe and the air passing by bypassing the trach EC collapsed the upper airway.
At CSA, your brain forgets to send the message your lungs to breathe. The upper airway collapse, usually not in CSA. Brands does not mean that no breathing.
Bottom line ...you need to know for sure what kind of Sleep Apnea. Then you need to know what causes Breathlessness.
So, before continuing with other tips, please feel free to tell me what kind of doctors have visited so far? This will help gain a better understanding of your Sleep Apnea diagnosis, quality, and recommend certified sleep centers and doctors.
And I have more questions ...Have you actually seen the full sleep studies (not just the summary)???
What you have heard the doctor to say and what is written in reality can be very different things. I will go to any decisions without these sleep studies right there in front of you, so you can tell if you have OSA, CSA or mixed (also known as "complex") sleep.
And what have you tried in the way of CPAP/BiPAP? What problems have you had? Discomfort, poor sleep, fugitive leaks, no improvement AHI, etc? Sometimes you think you've tried everything, but when you actually go back and try to eliminate the factors that caused the problems, you may be surprised that you can benefit from something you've removed as a feature.
I do not say, you cannot test everything already, but it is worth revisiting some of the key approaches with new eyes, before making a permanent hole in your neck or to continue to attempt completely.
Don't give up! Have a great deal of experience in it, and if you get any failure as a lesson, you're closer to cure Sleep Apnea than ever.
Best of luck to you. Sounds like you're in a very difficult situation,
Attila
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